There is no single template for a 'rare disease patient experience' and in our research we have met patients exhibiting everything from acute vulnerability and desperation to astonishing resilience and tenacity. However diverse people's experiences are, the unifying quality of 'rarity' means that commonalities exist.
Written by Ipsos' experts in Healthcare Ethnography, this article explores the common themes observed when researching patients living with a rare disease; from the battle for a diagnosis to the burden of managing others. It highlights the importance of empathy when seeking to understand patients who can often feel isolated and unseen.
Documentary | BLINDSIDED: How the world fell into a pandemic-shaped recession
BLINDSIDED is the product of a global, video-based research project that – through the eyes of families around the world – captures the critical moments over four months where the world found itself entangled in a pandemic and tumbling into recession. Join us for an exclusive streaming on 10 November.