REACT Health and Wellbeing study: FAQs

Frequently-asked Questions (FAQs) for the REACT follow-up study from Ipsos and Imperial College London.

Introduction

Research Background
What is this research about?
Who is doing this research?
Why have I been invited to take part?
Where did you get my name and email address?

Taking Part
Do I have to take part?
What do I need to do?
Can I take part whether I have had COVID-19 or not?
I took part in another COVID-19 study, can I still take part in this one?
I have a question about the survey
I have a question about my access code
I’m having trouble completing the survey on my computer. Can it be done on mobile phone or tablet?

Cognitive Assessment
What is a cognitive assessment?
Which organisation is the Cognitive Assessment run by?
Will I get the results of my cognitive assessment?
I am having trouble taking the cognitive assessment, can you help?
Can someone help me take the cognitive assessment?
Can someone else take the cognitive assessment instead of me?
Can I do the cognitive assessment again?
My cognitive assessment score was low, what does this mean?
The assessment would not run on my machine, what should I do?
The assessment stopped part way through, what should I do?
I could not see my results at the end of the assessment, how can I access them?
I ran out of time and could not complete the assessment, what should I do?
How do I access the cognitive assessment or view my results?

Data Protection
Has this study received ethical approval?
Is this research GDPR compliant?
Does the Health and Wellbeing survey or Cognitive Assessment use Cookies or similar code?
Where will my personal data be held and processed?
How will Ipsos and Imperial College London ensure my personal information is secure?
What will happen to the information I provide?
How can I contact DHSC, Ipsos and Imperial College London about this survey and/or my personal data?

Introduction

REACT Health and Wellbeing study (REACT-HW) is an extension study to the REal-time Assessment of Community Transmission (REACT) study. The main aim of this extension study is to better understand people’s health and wellbeing experiences over the course of the COVID-pandemic.

You can find more information about the study in the Participant Information Booklet.

If you need government advice on coronavirus please refer to the government website: https://www.gov.uk/coronavirus.  

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Research Background

What is this research about?

The REACT Health and Wellbeing Study aims to further our understanding of what differences exist between those who have had COVID-19 and those that haven’t, by exploring what symptoms these groups have experienced since the start of the pandemic.

By identifying the differences, we will also be able to see who is most at risk of developing ongoing ill health and how best to treat it and care for those affected. Such insight could improve patient care and support the development of better treatments.

You can find more information about the study in the Participant Information Booklet.

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Who is doing this research?

Imperial College London is conducting this study. Ipsos, an independent research organisation, is the data processor, acting on behalf of Imperial College London to deliver the study.  

For more information about Imperial College London, please visit http://www.imperial.ac.uk/

For more information about Ipsos, please visit https://www.ipsos.com/en-uk.

You can find more information about the study in the Participant Information Booklet.

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Why have I been invited to take part?

You have been invited to take part in this study because you:

  1. Took part in one of the REACT studies carried out by Imperial College London. This would have either been the REACT-1 antigen (nose and throat swab) testing study or the REACT-2 antibody (finger-prick blood) testing study; and
  2. Consented to be invited to take part in further research studies.

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Where did you get my name and email address?

When you took part in the REACT study, you confirmed your name and provided your email address. As you consented to be contacted for future research, your email address was passed on to Imperial College London who are now inviting you to take part in the REACT Health Study.
Imperial College London have provided a limited amount of data to Ipsos in order to invite you to take part in this study. The data provided to Ipsos consists of:

  • Title, Name and Surname
  • Email address
  • Your unique 8 character REACT ID
  • Age or date of birth
  • Mobile phone number
  • Sex
  • Region
  • Ethnicity
  • Study:  REACT-1 or REACT-2
  • The study Round you took part in (REACT-1 Rounds 1 to 19 or REACT-2 Rounds 1 to 6)
  • Date of REACT-1 / REACT-2 survey completion
  • COVID-19 test status – positive / negative

You can find more information about the study in the Participant Information Booklet.

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Taking Part

Do I have to take part?

Taking part is voluntary and you do not have to take part if you do not want to. If you do decide to take part, the results will help understand what differences exist between those who have had COVID-19 and those that haven’t, by exploring what symptoms these groups have experienced since the start of the pandemic.

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What do I need to do

To take part in the study you need to follow the instructions in the study invite email. Go to the survey website and enter your unique 8-character access code which can be found in your invite email. You will be taken to an online survey that will take around 15 minutes to complete. You will be asked questions about your health status, whether you have had COVID-19, any recent symptoms you have experienced and what impacts your health has had on your life since the start of the pandemic.

At the end of the survey, you will be given the option to say whether you would also like to be considered for an online cognitive assessment to better understand how your cognitive function (relating to the mental processes of perception, memory, judgment, and reasoning) has been affected by the pandemic. The assessment will take around 15 minutes to complete. This online test will assess your cognitive ability, including reasoning, working memory, attention, and emotion processing abilities. On completing the assessment, you will be provided with a summary report of your test scores relative to all other people who have undertaken the test.

You can find more information about the study in the Participant Information Booklet.

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Can I take part whether I have had COVID-19 or not?

Yes. You do not need to have had COVID-19 or experienced symptoms or ill health related to COVID-19 to take part in this study. Participation from a range of people who have had and have not had COVID-19 is extremely important for helping us understand the impact of the pandemic.

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I took part in another COVID-19 study, can I still take part in this one?

You have been invited to take part in this study because you:

  1. 1. Took part in one of the REACT studies carried out by Imperial College London. This would have either been the REACT-1 antigen (nose and throat swab) testing study or the REACT-2 antibody (finger-prick blood) testing study; and
  2. Consented to be invited to take part in further research studies.

If you have taken part in other COVID-19 research, you can still take part in this study.

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I have a question about the survey

For any queries about the Health & Wellbeing survey, please email [email protected] or call 0808 141 3062. For any queries about the Cognitive Assessment, please contact [email protected].

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I have a question about my access code

For any queries about the Health & Wellbeing survey, please email [email protected] or call 0808 141 3062. For any queries about the Cognitive Assessment, please contact [email protected].

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I’m having trouble completing the survey on my computer. Can it be done on mobile phone or tablet?

Yes, you can complete the Health & Wellbeing survey on a computer, mobile phone or tablet. Simply go to www.reactstudy.org/REACT-Health-Study and enter your unique 8 character access code from your invitation email.

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Cognitive Assessment

What is a cognitive assessment?

These online tests or "brain games" assesses cognitive ability, including reasoning, working memory, attention, and emotion processing abilities. The cognitive assessment will help to better understand how your cognitive function (relating to the mental processes of perception, memory, judgment, and reasoning) has been affected by the pandemic. The assessment will take 15 minutes to complete.

On completing the assessment, you will be provided with a summary report of your test scores relative to all other people who have undertaken the test.

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Which organisation is the Cognitive Assessment run by?

The cognitive assessment was developed and is run by researchers at Imperial College London.

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Will I get the results of my cognitive assessment?

When you reach the end of the assessment you will have the option of seeing how well you performed relative to other people who have undertaken the assessment. If you would like to see your results, then you should type your age when requested. A page will then be displayed showing your results relative to other people who are the same age.

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I am having trouble taking the cognitive assessment, can you help?

If you are having trouble taking the cognitive function assessment, please contact [email protected].

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Can someone help me take the cognitive assessment?

It is important that only the person invited to take part in this study completes the cognitive assessment. The responses will be linked to your responses to the Health and Wellbeing questionnaire which will allow researchers to understand what differences exist between those who have had COVID-19 and those that haven’t.

If you are having trouble accessing the assessment, you can ask for a friend or relative to help with the instructions or Imperial College London at [email protected].  However, you should not ask for help when undertaking the tests that comprise the assessment. 

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Can someone else take the cognitive assessment instead of me?

It is important that only the person invited to take part in this study completes the cognitive assessment. The responses will be linked to your responses to the Health and Wellbeing questionnaire which will allow researchers to understand what differences exist between those who have had COVID-19 and those that haven’t.

If you are having trouble accessing the assessment, you can ask for a friend or relative to help with the instructions or contact Imperial College London at [email protected].

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Can I do the cognitive assessment again?

You cannot retake the cognitive function assessment straight away. However, we are intending to recontact people in the future so that we can see how their performance changes across time.

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My cognitive assessment score was low, what does this mean?

Our assessment is designed to be a population research tool. It cannot be used to diagnose cognitive problems or conditions in individuals. If you achieved lower scores than you hoped, then this can be for a number of reasons. For example, it may be that you were tired or fatigued at the time of assessment and therefore had trouble concentrating.

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The assessment would not run on my machine, what should I do?

The assessment software is designed to run on most modern internet browsers and devices. If the assessment would not run, try to update your browser version, switch to a different browser or try a different device. If you are having trouble taking the cognitive function assessment, please contact [email protected].

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The assessment stopped part way through, what should I do?

The assessment might stop part way through if, for example, your internet connection is briefly interrupted. If this has happened, then you can click refresh in your browser or use the same link to navigate back into the assessment website. The software will start from where it left off, so you will not have to retake all of the tests. This will also work from a different machine to the one that you started the assessment on. If you are having trouble taking the cognitive function assessment, please contact [email protected]

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I could not see my results at the end of the assessment, how can I access them?

If you have trouble viewing the results, then make sure that you have entered your age where requested. If you already have entered your age, then try using your link and code from a different machine or browser, this should take you directly to the results page. If you are having trouble taking the cognitive function assessment, please contact [email protected]

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I ran out of time and could not complete the assessment, what should I do?

If you were interrupted or for other reasons started but could not complete the assessment, then you can use the same link to navigate back into the assessment website. The software will start from where it left off, so you will not have to retake all of the tests in the assessment. This will also work from a different machine to the one that you started the assessment on. If you are having trouble taking the cognitive function assessment, please contact [email protected]

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How do I access the cognitive assessment or view my results?

To start the cognitive assessment, complete it, or just check your results, Cognitron can be accessed at any time through the following link: https://reactlcss.e.cognitron.co.uk/.

You can use the same access code provided to you for the survey. If you lost your access code, please email [email protected].

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Data Protection

Has this study received ethical approval?

To protect your interests, all research at Imperial College London is reviewed by an independent group of people called a Research Ethics Committee. This study has been reviewed and granted approval by the South Central Berkshire B Research Ethics Committee.

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Is this research GDPR compliant?

Yes.  Ipsos is a member of the Market Research Society. All questionnaire information will be kept confidential by Ipsos, and approved Imperial College London staff and researchers. Nobody will be able to identify you in any published results.

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Does the Health and Wellbeing survey or Cognitive Assessment use Cookies or similar code?

Some online surveys collect information through the use of 'cookies'. These are small files stored on your computer.  These files are used as sparingly as possible and only for quality control, validation and, more importantly, to prevent us sending you reminders for an online survey you have already completed. It is possible for you to delete 'cookies' or to prevent their use by adjusting the browser settings on your computer.

We also automatically capture information about your operating system, display settings and browser type in order to ensure that the survey questionnaire is delivered in a form suited to the software your computer is using. We do not capture any other information from your computer.

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Where will my personal data be held and processed?

All of your personal data used and collected for this survey will be stored by Ipsos and Imperial College London in data centres and servers within the United Kingdom and EEA.

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How will Ipsos and Imperial College London ensure my personal information is secure?

Ipsos and Imperial College London take their information security responsibilities seriously and apply various precautions to ensure your information is protected from loss, theft or misuse. Security precautions include appropriate physical security of offices and controlled and limited access to computer systems.

Ipsos has regular internal and external audits of its information security controls and working practices and is accredited to the International Standard for Information Security, ISO 27001.

Similar processes are in place at Imperial College London where a database to carry out statistical analyses of the data at postcode level will be established in an ISO 27001 environment.

You can find more information about the study in the Participant Information Booklet.

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What will happen to the information I provide?

Imperial College London is the sponsor for this study and will act as data controller for this study. This means that they are responsible for looking after your information and ensuring that the processing complies with the General Data Protection Regulation (GDPR).

Imperial College London will keep your personal data for 20 years after the study has finished.

Imperial College London has regular internal and external audits of their information security controls and working practices and are accredited to the International Standard for Information Security, ISO 27001.

Ipsos is the data processor, acting on behalf of Imperial College London to deliver the survey. Ipsos and Imperial College London will keep your contact details confidential and use them to send out the survey for this study and to send out reminders for this study. Ipsos will only keep your data in a way that can identify you for as long as is necessary to support the research project and findings. By the end of December 2022, Ipsos will delete your data from their systems.

You can find more information about the study in the Participant Information Booklet.

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How can I contact DHSC, Ipsos and Imperial College London about this survey and/or my personal data?

If you have any questions about the research, please contact our helpline by email on [email protected] or call 0808 141 3062.

For questions about our privacy notice, our compliance with data protection laws or information we hold about you, please contact:

Ipsos:
Email: [email protected]
Post:
21-097031-01 REACT Health and Wellbeing study
Data Protection Officer, Compliance Department
Market and Opinion Research International Limited
3 Thomas More Square
London E1W 1YW
United Kingdom

Imperial College London:
Email: [email protected]
Post:
Data Protection Officer
Imperial College London
Exhibition Road
South Kensington
London
SW7 2BU

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