REACT Children and Young People study: FAQs

Frequently-asked Questions (FAQs) for the REACT follow-up study from Ipsos and Imperial College London.

The author(s)

  • COVID-19 Follow Up Study Test Helpline
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Introduction

Research Background
What is this research about?
Who is doing this research?
Why has my child been invited to take part?
Where did you get my child’s name and email address?

Taking Part
Does my child have to take part?
What does my child need to do?
Can my child take part whether they have had COVID-19 or not?
My child took part in another COVID-19 study, can they still take part in this one?
I have a question about the survey
I have a question about my child's access code
My child is having trouble completing the survey on their computer. Can it be done on mobile phone or tablet?
Can I complete the survey on behalf of my child?
Why do you ask for permission to link information from the survey to education records?

Cognitive Assessment
What is a cognitive assessment?
How do I access the cognitive assessment website?
Which organisation is the Cognitive Assessment run by?
Will my child get the results of their cognitive assessment?
My child is having trouble taking the cognitive assessment, can you help?
Can someone help my child take the cognitive assessment?
Can someone else take the cognitive assessment instead of my child?
Can my child do the cognitive assessment again?
My child's cognitive assessment score was low, what does this mean?
The assessment would not run on my child's machine, what should I do?
The assessment stopped part way through, what should my child do?
My child could not see their results at the end of the assessment, how can my child access them?
My child ran out of time and could not complete the assessment, what should my child do?

Data Protection
Has this study received ethical approval?
Is this research GDPR compliant?
Does the Survey or Cognitive Assessment use Cookies or similar code?
Where will my child's personal data be held and processed?
How will Ipsos and Imperial College London ensure my child's personal information is secure?
What will happen to the information my child provides?
How can I contact Ipsos and Imperial College London about this survey and/or my child's personal data?

Introduction

The REACT Children and Young People study (REACT-CYP) is an extension study to the REal-time Assessment of Community Transmission (REACT) study. The main aim of this extension study is to better understand children’s health and wellbeing experiences over the course of the COVID-pandemic.

You can find more information about the study in the Participant Information Booklet.

If you need government advice on coronavirus please refer to the government website: https://www.gov.uk/coronavirus.  

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Research Background

What is this research about?

The REACT Children and Young People Study aims to further our understanding of what differences exist between those who have had COVID-19 and those that haven’t, by exploring what symptoms these groups have experienced since the start of the pandemic.

By identifying the differences, we will also be able to see who is most at risk of developing ongoing ill health and how best to treat it and care for those affected. Such insight could improve patient care and support the development of better treatments.

Children and Young people aged 5 to 17 years old are selected to take part in the study. The FAQs below are for parents and children aged 5 to 17 years old. They are aimed at parents but if you have been selected to take part you can replace “your child” with “you”.

You can find more information about the study in the Participant Information Booklet.

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Who is doing this research?

Imperial College London is conducting this study. Ipsos, an independent research organisation, is the data processor, acting on behalf of Imperial College London to deliver the study.  

For more information about Imperial College London, please visit https://www.imperial.ac.uk/

For more information about Ipsos, please visit https://www.ipsos.com/en-uk.

You can find more information about the study in the Participant Information Booklet.

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Why has my child been invited to take part?

Your child has been invited to take part in this study because they:

  1. Took part in the REACT-1 antigen (nose and throat swab) testing study carried out by Imperial College London; and
  2. Consented to be invited to take part in further research studies.

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Where did you get my child's name and email address?

Your child has been invited to take part in this study because they:

  1. Took part in the REACT-1 antigen (nose and throat swab) testing study carried out by Imperial College London; and
  2. Consented to be invited to take part in further research studies.

When your child took part in the REACT study, you confirmed their name and provided your email address. As you consented to be contacted for future research, your email address was passed on to Imperial College London who are now inviting your child to take part in the REACT Children and Young People Study.

Imperial College London have provided a limited amount of data to Ipsos in order to invite your child to take part in this study. The data provided to Ipsos consists of:

  • Title, Name and Surname
  • Email address or Postal address
  • Mobile phone number
  • Your child’s unique 8 character REACT ID
  • Age
  • Sex
  • Region
  • Ethnicity
  • The study Round your child took part in
  • Date of REACT-1 survey completion
  • COVID-19 test status – positive / negative

You can find more information about the study in the Participant Information Booklet.

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Taking Part

Does my child have to take part?

Taking part is voluntary and your child does not have to take part if they do not want to. If your child does decide to take part, the results will help understand what differences exist between those who have had COVID-19 and those that haven’t, by exploring what symptoms these groups have experienced since the start of the pandemic.

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What does my child need to do?

To take part in the study your child needs to follow the instructions in the study invite email. Go to the survey website and enter their unique 8-character access code which can be found in your child’s invite email or letter.  Your child will be taken to an online survey that will take around 15 minutes to complete. Your child will be asked questions about their health status, whether they have had COVID-19, any recent symptoms they have experienced and what impacts their health has had on their life since the start of the pandemic.

At the end of the survey, your child will be given the option to say whether they would also like to be considered for an online cognitive assessment or “brain games” to better understand how their cognitive function (relating to the mental processes of perception, memory, judgment, and reasoning) has been affected by the pandemic. The assessment will take 15 to 20 minutes to complete. This online test will assess your child’s cognitive ability, including reasoning, working memory, attention, and emotion processing abilities. On completing the assessment, your child will be provided with a summary report of their test scores relative to all other people who have undertaken the test.

You can find more information about the study in the Participant Information Booklet.

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Can my child take part whether they have had COVID-19 or not?

Yes. Your child does not need to have had COVID-19 or experienced symptoms or ill health related to COVID-19 to take part in this study. Participation from a range of people who have had and have not had COVID-19 is extremely important for helping us understand the impact of the pandemic.

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My child took part in another COVID-19 study, can they still take part in this one?

Your child has been invited to take part in this study because you:

  1. Took part in the REACT-1 antigen (nose and throat swab) testing study carried out by Imperial College London; and
  2. Consented to be invited to take part in further research studies.

If your child has taken part in other COVID-19 research, they can still take part in this study.

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I have a question about the survey

For any queries about the REACT Children and Young People study, please email [email protected] or call 0808 141 3062. For any queries about the Cognitive Assessment, please contact [email protected].

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I have a question about my child's access code

For any queries about the REACT Children and Young People study, please email [email protected] or call 0808 141 3062. For any queries about the Cognitive Assessment, please contact [email protected].

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My child is having trouble completing the survey on their computer. Can it be done on mobile phone or tablet?

Yes, your child can complete the survey on a computer, mobile phone or tablet. Simply go to the following website https://www.reactstudy.org/youth-health-study and enter your child’s unique 8 character access code from their invitation.

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Can I complete the survey on behalf of my child?

Yes, for children aged 5-12 years we ask that the parent/guardian completes the survey by proxy on behalf of the study participant.

For those towards the lower end of the 12 to 17 age band and children and young people with Special Educational Needs or disability, the parent/guardian may wish to help their child complete the survey.

After completing the main survey, your child will be invited to complete an online cognitive assessment or “brain games”. Your child will be asked to perform a number of tasks that test cognitive function. These should take around 15 to 20 minutes.

If your child is aged 5 to 15 years old, we advise that you are present with your child when they are playing the games, to ensure that they understand what they need to do. This is particularly likely to be necessary for younger children and those that cannot read confidently. However, please limit assistance to understanding the instructions and helping them interact with the computer, rather than helping with the answers or choices, as these must be your child’s alone.

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Why do you ask for permission to link information from the survey to education records?

The survey asks for permission for Imperial College to link information from education records held by the English Department for Education and the Office for National Statistics holding these data to this survey data to follow your child’s educational attainment for up to 10 years. All such data will be held securely by Imperial College and kept confidential. This will allow us to study the impact of the pandemic on medium to long term educational outcomes.

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Cognitive Assessment

What is a cognitive assessment?

These online tests or "brain games" assesses cognitive ability, including reasoning, working memory, attention, and emotion processing abilities. . The cognitive assessment will help to better understand how your child’s cognitive function (relating to the mental processes of perception, memory, judgment, and reasoning) has been affected by the pandemic. The assessment will take 15-20 minutes to complete.

On completing the assessment, your child will be provided with a summary report of their test scores relative to all other people who have undertaken the test.

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How do I access the cognitive assessment website?

Your child can complete the online brain games by following one of the links below, depending on their age.

If your child is having trouble accessing the assessment, they can ask for a parent or guardian to help with the instructions or contact Imperial College London at [email protected].

If your child is aged 5 to 15 years old, we advise that you are present with your child when they are playing the games, to ensure that they understand what they need to do. This is particularly likely to be necessary for younger children and those that cannot read confidently. However, please limit assistance to understanding the instructions and helping them interact with the computer, rather than helping with the answers or choices, as these must be your child’s alone.

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Which organisation is the Cognitive Assessment run by?

The cognitive assessment was developed and is run by researchers at Imperial College London.

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Will my child get the results of their cognitive assessment?

When your child reaches the end of the assessment your child will have the option of seeing how well they performed relative to other people who have undertaken the assessment. If your child would like to see their results, then your child should type their age when requested. A page will then be displayed showing your child’s results relative to other people who are the same age.

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My child is having trouble taking the cognitive assessment, can you help?

If your child is having trouble taking the cognitive function assessment, please contact [email protected].

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Can someone help my child take the cognitive assessment?

It is important that only the person invited to take part in this study completes the cognitive assessment. The responses will be linked to your child’s responses to the questionnaire which will allow researchers to understand what differences exist between those who have had COVID-19 and those that haven't.

If your child is having trouble accessing the assessment, your child can ask for a parent or guardian to help with the instructions or Imperial College London at [email protected].  However, your child should not ask for help when undertaking the tests that comprise the assessment. 

If your child is aged 5 to 15 years old, we advise that you are present with your child when they are playing the games, to ensure that they understand what they need to do. This is particularly likely to be necessary for younger children and those that cannot read confidently. However, please limit assistance to understanding the instructions and helping them interact with the computer, rather than helping with the answers or choices, as these must be your child’s alone.

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Can someone else take the cognitive assessment instead of my child?

It is important that only the person invited to take part in this study completes the cognitive assessment. The responses will be linked to your child’s responses to the questionnaire which will allow researchers to understand what differences exist between those who have had COVID-19 and those that haven’t.

If your child is having trouble accessing the assessment, they can ask for a parent or guardian to help with the instructions or contact Imperial College London at [email protected].

If your child is aged 5 to 15 years old, we advise that you are present with your child when they are playing the games, to ensure that they understand what they need to do. This is particularly likely to be necessary for younger children and those that cannot read confidently. However, please limit assistance to understanding the instructions and helping them interact with the computer, rather than helping with the answers or choices, as these must be your child’s alone.

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Can my child do the cognitive assessment again?

Your child cannot retake the cognitive function assessment straight away. However, we are intending to recontact people in the future so that we can see how their performance changes across time.

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My child's cognitive assessment score was low, what does this mean?

Our assessment is designed to be a population research tool. It cannot be used to diagnose cognitive problems or conditions in individuals. If your child achieved lower scores than they hoped, then this can be for a number of reasons. For example, it may be that your child was tired or fatigued at the time of assessment and therefore had trouble concentrating.

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The assessment would not run on my child's machine, what should my child do?

The assessment software is designed to run on most modern internet browsers and devices. If the assessment would not run, try to update your child’s browser version, switch to a different browser or try a different device. If your child is having trouble taking the cognitive function assessment, please contact [email protected].

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The assessment stopped part way through, what should my child do?

The assessment might stop part way through if, for example, your child’s internet connection is briefly interrupted. If this has happened, then your child can click refresh in their browser or use the same link to navigate back into the assessment website. The software will start from where it left off, so your child will not have to retake all of the tests. This will also work from a different machine to the one that your child started the assessment on. If your child is having trouble taking the cognitive function assessment, please contact [email protected]

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My child could not see their results at the end of the assessment, how can my child access them?

If your child has trouble viewing the results, then make sure that they have entered their age where requested. If your child has already entered their age, then try using your child’s link and code from a different machine or browser, this should take your child directly to the results page. If your child is having trouble taking the cognitive function assessment, please contact [email protected].

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My child ran out of time and could not complete the assessment, what should my child do?

If your child was interrupted or for other reasons started but could not complete the assessment, then your child can use the same link to navigate back into the assessment website. The software will start from where it left off, so your child will not have to retake all of the tests in the assessment. This will also work from a different machine to the one that your child started the assessment on. If your child is having trouble taking the cognitive function assessment, please contact [email protected].

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Data Protection

Has this study received ethical approval?

To protect your child’s interests, all research at Imperial College London is reviewed by an independent group of people called a Research Ethics Committee. This study has been reviewed and granted approval by the South Central Berkshire B Research Ethics Committee.

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Is this research GDPR compliant?

Yes.  Ipsos is a member of the Market Research Society. All questionnaire information will be kept confidential by Ipsos, and approved Imperial College London staff and researchers. Nobody will be able to identify your child in any published results.

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Does Survey or Cognitive Assessment use Cookies or similar code?

Some online surveys collect information through the use of 'cookies'. These are small files stored on your child’s computer.  These files are used as sparingly as possible and only for quality control, validation and, more importantly, to prevent us sending your child reminders for an online survey they have already completed. It is possible for your child to delete 'cookies' or to prevent their use by adjusting the browser settings on your child’s computer.

We also automatically capture information about your child’s operating system, display settings and browser type in order to ensure that the survey questionnaire is delivered in a form suited to the software your child’s computer is using. We do not capture any other information from your child’s computer.

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Where will my child's personal data be held and processed?

All of your child's personal data used and collected for this survey will be stored by Ipsos and Imperial College London in data centres and servers within the United Kingdom and EEA.

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How will Ipsos and Imperial College London ensure my child's personal information is secure?

Ipsos and Imperial College London take their information security responsibilities seriously and apply various precautions to ensure your child’s information is protected from loss, theft or misuse. Security precautions include appropriate physical security of offices and controlled and limited access to computer systems.

Ipsos has regular internal and external audits of its information security controls and working practices and is accredited to the International Standard for Information Security, ISO 27001.

Similar processes are in place at Imperial College London where a database to carry out statistical analyses of the data at postcode level will be established in an ISO 27001 environment.

You can find more information about the study in the Participant Information Booklet.

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What will happen to the information my child provides?

Imperial College London is the sponsor for this study and will act as data controller for this study. This means that they are responsible for looking after your child's information and ensuring that the processing complies with the General Data Protection Regulation (GDPR).

Imperial College London will keep your child's personal data for 10 years after the study has finished.

Imperial College London has regular internal and external audits of their information security controls and working practices and are accredited to the International Standard for Information Security, ISO 27001.

Ipsos is the data processor, acting on behalf of Imperial College London to deliver the survey. Ipsos and Imperial College London will keep your child’s contact details confidential and use them to send out the survey for this study and to send out reminders for this study. Ipsos will only keep your child’s data in a way that can identify your child for as long as is necessary to support the research project and findings. By the end of February 2023, Ipsos will delete your child’s data from their systems.

You can find more information about the study in the Participant Information Booklet.

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How can I contact Ipsos and Imperial College London about this survey and/or my child's personal data?

If you have any questions about the research, please contact our helpline by email on [email protected] or call 0808 141 3062.

For questions about our privacy notice, our compliance with data protection laws or information we hold about you, please contact:

Ipsos:
Email: [email protected]
Post:
22-031093-01 REACT Children and Young People study
Data Protection Officer, Compliance Department
Market and Opinion Research International Limited
3 Thomas More Square
London E1W 1YW
United Kingdom

Imperial College London:
Email: [email protected]
Post:
Data Protection Officer
Imperial College London
Exhibition Road
South Kensington
London
SW7 2BU

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  • COVID-19 Follow Up Study Test Helpline

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